All the symptoms and up to date research can be found here
In 2001 I was hospitalized and miss diagnosed with meningitis and encephalitis. 4 Strokes later the revised opinion and correct diagnosis was Behcets
I was relieved to have a diagnosis but when I asked my GP to explain my condition to me he shrugged, apologized “It’s a rare auto immune disease, we only really touched on it in medical school” handed me a confusing regime of medication and sent me out the door.
At the time I was the only diagnosed case of Behcets in South Africa, I had a lot of questions, no answers and no support. 6 Months earlier I was healthy, fit, working and carefree. Al of a sudden I was out of work, in a wheelchair and very alone and very frightened. In a very short time Behcets had robbed me of the life I knew.
I spent ages scouring the internet for more information and support. In July 2010 I attended the International Behcets Conference in London UK where I met many other Behcets sufferers and the wonderful and brilliant people who spend their life treating and fighting the disease.
I returned with knowledge, advice, support and HOPE!
I was no longer alone or frightened.
I was on a mission…
With new-found knowledge I “educated” my own GP and sought out the correct medical specialists to better deal with my disease. Informed management of my medication and lifestyle has improved my quality of life and life expectancy significantly. I cannot undo the damage that the initial mismanagement or misdiagnosis of my disease has done to my body but I can help others to avoid the same mistakes
It is my opinion that Bechets is very much mis/under diagnosed in Sub Saharan Africa because of its “rare” status. And as time passes and awareness increases more cases has come to light in SA.
I have started this website to increase awareness of Bechets and more importantly to support my fellow sufferers.
YOU ARE NOT ALONE.
I will post information on new drugs, local specialists and support groups on the website as fast as I can gather it. So come back and have a look every now and then.